Navigating the Steps to Getting a Diagnosis in New Zealand: What Should You Expect?

The journey to obtaining a diagnosis for your child can be intimidating. Many parents feel overwhelmed by the process, from noticing initial differences to considering testing options. Although this journey can be complicated, knowing what to expect can give you the confidence to navigate it effectively. In the coming weeks, I intend to provide practical steps and insights to help you clarify your path to a diagnosis and determine if pursuing one is truly worthwhile.

Today, we begin with Step 1: Recognizing the problems.

Acknowledging the issue, it ain't going away.

The journey to diagnosis often starts with recognizing that your child, indeed, is differently advantaged or disadvantaged. Whether it is unusual behaviours, social difficulties or sensitivities, it is essential to acknowledge the value of knowing.

When trying to get a diagnosis in New Zealand, keeping a comprehensive journal is incredibly beneficial to the assessment process. Here are some suggestions on how to effectively document observations:

Journal Suggestions

• Record Presentations: Note any specific learning or behavioral symptoms your child exhibits, such as difficulties in concentration, impulsivity, or social interactions.

• Frequency and Duration: Document when these symptoms occur, how long they last, and any patterns you observe. For example, do certain behaviors intensify during specific times of the day or in particular settings?

• Identify Triggers: Pay attention to potential triggers that may exacerbate the child’s symptoms. This could include environmental factors like noise, changes in routine, or emotional stressors.

• Document Responses: Write down how the child responds to different situations or interventions. This can help in understanding what strategies are effective or ineffective.

• Include Context: Provide context for the observations, such as recent changes at home or school, which may influence the child’s behavior.

This detailed documentation not only aids in communicating the child's experiences to professionals but also helps you to feel confident about your concerns.

I prefer digital content as it means I get to read through it using my techy supports and make notes as I listen. Google Drive is great as it allows for folders to be shared but any collaborative platform works. I recently tried the app Day One and it was awesome! If you have some time, click on the image and get playing now.

What if they aren't necessary?

If your chosen assessor/diagnostician neither requests nor requires your detailed observations and input, then you have picked the wrong assessor. These always hold significance and are crucial in evidence-based data analysis. If your voice isn't loud, speak elsewhere.

Next Up: What you can expect in our next blog postings

Diagnosis in New Zealand

Below are some topics I'm considering for upcoming blog posts. Your feedback and suggestions are always welcome, valued, and reviewed by me, the author, Phillipa. I'd love to hear your thoughts...

1. Understanding Learning and Behavior Difficulties

• Distinguishing between learning disabilities and behavioral issues

• Common learning and behavior challenges in children

• Key signs and symptoms to watch for

2. Initial Steps for Parents

• Identifying the need for an assessment

• Collecting observations and documentation

• Engaging with teachers and caregivers

3. Seeking Professional Help

• Locating a pediatrician or family doctor

• Understanding the role of educational psychologists

• Comparing private and public assessment options

4. The Assessment Process

• What to anticipate during the assessment

• Different types of assessments available (psychometric tests, observations, etc.)

• Typical duration of the assessment process

5. Interpreting the Diagnosis

• Comprehending the assessment results

• Common diagnoses and their implications

• Subsequent steps after receiving a diagnosis

6. Support Services and Resources

• Accessing special education services in New Zealand

• Locating support groups and community resources

• Using online resources and tools for parents

7. Advocating for Your Child

• Understanding your rights as a parent

• Effective communication with schools

• Developing an Individual Education Plan (IEP)

8. Coping Strategies for Families

• Managing stress and emotional well-being

• Building a support network

• Fostering resilience in your child

9. Success Stories and Case Studies

• Real-life experiences in navigating the diagnosis process

• Lessons learned from other families

• Inspirational stories of overcoming challenges

10. Future Trends in Diagnosis and Support

• New research in learning and behavior difficulties

• Innovations in assessment tools and techniques

• Policy changes impacting support services in New Zealand